I urge everyone to print the poster I have included in this post and put it up in your office. To increase awareness is half the battle for children with rare syndromes and illnesses. I also would encourage you all to look at the website. There is great amount of information. Many blessings, Makenna's Mom
Here is the pdf for the poster: http://www.ccakids.com/newsletters/poster3.pdf
Here is the link to the website:
http://www.ccakids.com/abt.asp
The following are brief descriptions and are intended to inform and are not intended for diagnosis. A geneticist who is a member of an experienced craniofacial team should make diagnosis.
What is a craniofacial disorder?
A craniofacial disorder refers to an abnormality of the face and/or the head. Craniofacial differences can result from abnormal growth patterns of the face or skull, which involves soft tissue and bones. A craniofacial condition may include disfigurement brought about by birth defect, disease or trauma. From the Craniofacial Website September 7, 2009
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