Wednesday, September 23, 2009

Makenna MiniVan Campaign

We need your help on our new quest for a Mini Van for Makenna. She is getting bigger every day and transporting her and getting her in and out of a Jeep is no longer a good idea. So this organization will help families like ours with obtaining a mini van. We just need letters of support on Makennas behalf.

Below is the way to nominate Makenna Caroline

If I Only had a ... Nomination & Award Program
We are currently accepting nominations for our Child Wellness Community Fund"If only I had a ..." program.This wonderful program comes to life by changing a life! Do you know someone who needs a vehicle to get their sick child to the doctor or hospital, do you know a mom with a special needs child that could use a lift to get their child from the bed to the wheel chair, do you know a non-profit organization that could use office equipment, do you know a community campaign that needs help in developing a solid marketing plan or reaching the media? These are just a few of the services/products we might be able to help with.Help us help the community by nominating an individual or organization in need. Also please consider donating your vehicle to our "Vehicle Donation Program" or donating medical equipment and supplies for "Second Home" ... the Community Fund has many programs in place to help make your community stronger, Please call us to see how you or your company could help!Nominations are accepted on an on-going basis. Awards are given on the level of need (not wants) and past history of giving back to the community. Nominations will be considered for a period of 12 months from the date received. It is easy to nominate your favorite organization, child or family in need. Just click here to download the Nomination Form or call 513.943.1900.

Monday, September 7, 2009

September is Craniofacial Acceptance Month

I urge everyone to print the poster I have included in this post and put it up in your office. To increase awareness is half the battle for children with rare syndromes and illnesses. I also would encourage you all to look at the website. There is great amount of information. Many blessings, Makenna's Mom
Here is the pdf for the poster:

Here is the link to the website:

The following are brief descriptions and are intended to inform and are not intended for diagnosis. A geneticist who is a member of an experienced craniofacial team should make diagnosis.

What is a craniofacial disorder?

A craniofacial disorder refers to an abnormality of the face and/or the head. Craniofacial differences can result from abnormal growth patterns of the face or skull, which involves soft tissue and bones. A craniofacial condition may include disfigurement brought about by birth defect, disease or trauma. From the Craniofacial Website September 7, 2009

Labor Day and Children's Mercy Hospital

I usually find a way to make a trip to Kansas City now and again. However my daughter feels it is better to make a pit stop to the ER and then to the small town airport (Either Dodge City or Manhattan will do) to catch a Children's Mercy flight. She then arranges for a room in either 5 Henson or 5 Sutherland. We stay at least 3-4 days. Makenna you ARE NOT GETTING A CAR at 16.
On this Labor day we landed at the Business airport downtown, got onto the ambulance at about 10:30 pm. We got into a room around 11. Makenna was having upper respiratory problems earlier that afternoon. We meet with Dr. Kate Dove at Pediatric Associates. She is great. She thought it was best to send Makenna to CMH as she was not able to breath. It was scary for me, but I figure God once again knew what HE was doing. So she was sent to a room at CMH and monitored and given steroids and a new inhaler. Hopefully she will be better this week. She is at Grandma Camp Joni in Dodge City for a week. Continue to keep all the M-CMTC babies in your prayers. We heard that Ms. Eva was at Children's earlier in the week. The Drs. didn't give names, but we assumed there are not too many girls in MO, KS with M-CMTC. Hope you are feeling better Eva.

Friday, September 4, 2009

Daddy Says

A little dirt never hurt anybody

Point, Snap, Pull ( My daddy is a volleyball coach)

We've got to toughen you up

You'll learn someday

Who wants pancakes?

Go ask your mother

What did your mother say?

You didn't get that from me

Do what I say, not what I do
Listen to your mother

Money doesn't grow on trees

I'm not made of money

Don't throw that out! We can use that!

That's a steal!

We're not lost I just don't know where we are

It's that place where the post office used to be

Has anyone seen my keys? Jacket? Hat? Glasses?

I'm not sleeping

I'm just resting my eyes

What was I saying? Oh yeah...

Sleep tight
don't let the bedbugs bite

Makennaisms: Tips to Live By

What I know.....I learned in daycare!
1. Crying usually gets you what you want.
2. Sometimes blaming that smell on your friend is easier than fessing up.
3. Eating before you get to daycare is awesome....but having breakfast again with your friends is SMART.
4. Getting shipped off to you grandparents doesn't mean your parents love you any less, it just means the Grandparents LOVE you More.
5. Screaming in the middle of the night will make sure you are an only child. Trust me this really works.
6. Pretending to be starving!!! Yes I do this often.
7. Only playing with one toy, not always a good idea, especially close to Christmas, you may not get anything new. At least slobber on your toys. This makes it look like you have shown interest.
8. Try to enjoy a car ride every now and again. Your mommys need to get out of the house sometimes.
9. Asking for a puppy...only works when you can go potty without help. Still working on it.
10. Going shopping when grandma comes to town: Follow these rules. 1. Where clothes that are too small, 2. Loose at least one shoe. 3. Loose both socks....this will guarantee at least 2 items at best. Grandma will give your mommy a "look" this means more clothes for you. Mommy will thank you later.

Day 2 in the NICU

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Grandparent's Day-Why Grandparents are the Best

My Grandparents:
Great Grandparents Dorothy and Eldon Lindsey Sr. (R.I.P.)
Great Great Grandma Catherine Willimas (R.I.P)
Great Grandma Robert Williams Sr.
Marsha and Robert Williams (Mimi and Papa)
Barbara and Marnel James Sr. (Great Grandparents)
Esther Lynn Clark and Melvin D. Clark (Great Grandparents)
Elsie Givens-Great Grandma
Joni M. Clark (Grandma J)
Marcus D. Clark

The impetus for a National Grandparents Day originated with Marian McQuade, a housewife in Fayette County, West Virginia. Her primary motivation was to champion the cause of lonely elderly in nursing homes. She also hoped to persuade grandchildren to tap the wisdom and heritage their grandparents could provide. President Jimmy Carter, in 1978, proclaimed that National Grandparents Day would be celebrated every year on the first Sunday after Labor Day.
When is Grandparents Day?
In 2009, Grandparents Day falls on Sept. 13th

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My Arrival into the World

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